by Karen Litwack

Congress is on recess and in campaign mode, but the debates and discussions around critical health issues are continuing behind the scenes.  When Congress resumes after Labor Day, there will be a number of issues that will have to be addressed prior to the election including: Zika funding, federal appropriations, and most importantly for our community, the landmark 21st Century Cures Act. Discussions are ongoing and support among Congressional leadership is growing for the legislation, which may also encompass the White House's Cancer Moonshot initiative. Meanwhile, rare disease advocates are fanning-out across the country to make sure their legislators understand the importance of this legislation. 

For more information about Rare Disease Legislative Advocates – In-District Lobby Days click on https://www.facebook.com/Rare.Disease.Legislative.Advocates/